VA Transplant Brochures - Frequently Asked Questions
The following websites are helpful to help keep family and friends informed, organize volunteers or caregivers, and receive messages and well wishes from loved ones. All are private and confidential, allowing you to manage who has access; all are free of charge and all provide directions on how to set up your website. They also allow you to set links on your website so your visitors can get more information about the diagnosis, treatment or any other information you want them to have, just by clicking the link.
• Caring Bridge – www.caringbridge.org*
• My Lifeline – www.mylifeline.org* – also allows you to create a calendar of needed help and people can volunteer for activities when they log into your page.
• The Status – www.thestatus.com*
• Lotsa Helping Hands – www.lotsahelpinghands.com* – allows you to create a calendar of needed help and email to a community of friends. Friends can log in and sign up for what they would like to do.
Smoking cessation - http://www.publichealth.va.gov/smoking/
Fred Hutchinson Transplant Program at SCCA*
Bone Marrow Registry—National Marrow Donor Program - www.marrow.org*
Additional Resources for Healthy Living After Transplant
National Marrow Donor Program* - Stages of recovery, getting better, working with doctors, and caregiving information can be easily found at the National Marrow Donor Program’s website, Patients and Families tab.
BMT InfoNet - www.bmtinfonet.org* - Blood and Marrow Transplant Information Network (BMT InfoNet) is dedicated to providing transplant patients, survivors and their loved ones with emotional support, and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.
Their book - Bone Marrow and Blood Stem Cell Transplants – A Guide for Patients walks through what to expect before, during and after transplant and includes the perspective of patients and caregivers as well. Recommended reading - chapter 15 titled: Long-Term Survivors: What Lies Ahead.
Center for Spirituality and Healing - www.csh.umn.edu*
The University of Minnesota’s Center for Spirituality and Healing enriches health and well-being by providing high quality interdisciplinary education, conducting rigorous research, and delivering innovative programs that advance integrative health and healing.
Create a Healthy Lifestyle - www.takingcharge.csh.umn.edu/lifestyle*
The Healthy Lifestyle Tools in this section lead you through a program created by healthcare experts to improve your physical, mental, social, and spiritual health. To begin, click on each aspect of health to complete a self-assessment and get valuable tips and expert information. Then click Create a goal to set and track your personal goals.
National Cancer Institute (NCI) - www.cancer.gov*
The NCI is part of the National Institutes of Health (NIH), which is one of the 11 agencies that compose the Department of Health and Human Services (NHS). The NCI is the Federal Government’s principal agency for cancer research and training. The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
Visit their website at: www.cancer.gov* and follow the following steps:
• Click on the tab ‘Cancer Topics’
• Scroll down and find the ‘PDQ’ topic
• The last topic is ‘Complimentary and Alternative Medicine’ – click on this topic
* Links will take you outside of the Department of Veterans Affairs Web site. VA does not endorse and is not responsible for the content of the linked websites. The link will open in a new window.